01. Diagnosis
Tatiana J.
Two days had passed since she was born — two days filled with a constant flow of doctors from different
This blog was born out of love, experience, and the need to share what we’ve learned as a family. For years, I’ve researched, consulted with doctors, nutritionists, and therapists, and tried real alternatives to improve the quality of life of my daughter, who was diagnosed with a rare syndrome. What you’ll find here is the result of that journey: clear information, practical resources, and support for other families who, like ours, face complex challenges with hope and commitment.
If this content has been helpful to you and you’d like to support this work so it can continue growing and helping more families, I warmly invite you to consider making a donation.
Two days had passed since she was born — two days filled with a constant flow of doctors from different
On her second day of life, they were able to perform the surgery that would either save her or, at
Micaela I lived for about two weeks in the hospital, in a room with all the comforts provided for parents
Clean Intermittent Catheterization (CIC): A Guide for Parents and Caregivers When a child’s body cannot completely empty the bladder on
What Is a G-Tube and Why Is It Used? A gastrostomy tube, commonly known as a G-tube, is a small
What Is Total Parenteral Nutrition (TPN)? 📌 Parenteral nutrition means “feeding through the bloodstream.” It involves giving a special mixture
When you have a child with a complex diagnosis like Berdon syndrome, every decision about their care and nutrition becomes
What Does the Science Say? Anti-inflammatory diets have been widely studied over the past decades, particularly for their effects on
