Talking Berdon

In this digital space, I dedicate valuable time to sharing our story—and the stories of many families—stories filled with powerful emotions, hope, learning, and beautiful experiences with these little warriors born with this syndrome. Through faith, science, and action, we have been able to challenge the grim prognosis of this rare disease.

Difficulties do not define our ability to overcome, but rather the strength with which we rise after each fall. ".

Berdon Syndrome or MMIHS
Helping Families

What is Berdon Syndrome?

Berdon syndrome, also known as megacystis-microcolon-intestinal hypoperistalsis syndrome (MMIHS), is a very rare and typically fatal congenital disorder that affects the bladder, colon, and intestines. It was first described by Walter Berdon and colleagues in 1976.

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Living with Berdon Syndrome

Living with Berdon Syndrome (megacystis-microcolon-intestinal hypoperistalsis) requires a special care routine, home organization, and the use of medical equipment. If you are a parent or caregiver of a child with this condition, this article is designed to support you with practical tips and resources to make daily life more manageable.

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Real Stories from Families United by Love and Resilience

Each Berdon syndrome diagnosis is unique, but what unites us is stronger than any challenge. In this section, families share their journeys—the hard moments, the small victories, and the unbreakable love that guides them. These are not just medical stories; they are stories of hope, adaptation, and community. Because when one family speaks, we all learn. Welcome to this space where no one walks alone!

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Talking Berdon

Berdon Syndrome or MMIHS Helping Families

What is Berdon Syndrome?

Living with Berdon Syndrome

Real Stories from Families United by Love and Resilience

Berdon Syndrome or MMIHS
Helping Families